The “Make My Mummy Better” campaign has
been set up to fund treatment that I am receiving
in Germany for metastatic breast cancer
Registered Charity Address:
Friends Supporting Friends
Make My Mummy Better Campaign
Old Courthouse
High Street
Fairford
Gloucestershire
GL7 4AD
Registered Charity No. 1113977
Thursday 23rd April 2009
Over the last month I have had so many people comment on how well I am looking. It gives me a real boost to hear that but it also makes me realise how bad I must have looked at the end of last year.
My last chemo session was on the 24th December 2008. I haven’t had this long a break between chemo’s for over four years and I can’t believe how good it feels. I had got so used to feeling ill all the time that I had forgotten how it felt not being on chemo. I actually enjoyed doing things with Mya over the Easter holidays. I didn’t feel like I needed to have a mid day nap to be able to have enough energy to be there for her. I know I will have to re-start on chemo at some point in the near future, but I am enjoying not being on it now.
Went to see Dr Paul Ellis at The London Oncology Clinic today. He was very pleased to see that I was doing so well. As the biopsies hadn’t come back conclusive he recommended that we wait, at least until after a scan, before re-starting chemo. He told me again, that my case is very unusual, so it was very difficult to know what to do next.
He suggested that the first thing to do would be to start back on the monoclonal antibody drugs (Herceptin, Avastin and Lapatinib). I should also explore all the options that are available to me if the next scan shows that there is disease present. He suggested that in addition to the Immunotherapy I look into Phase 1 clinical trials at the Royal Marsden Hospital and at the Guy’s and St Thomas’ Hospital.
We walked away feeling quite confused. I think we had wanted him to say that the irritated skin was definitely, in his opinion, not cancer and that he knew exactly what I should do next. I know it was unrealistic, but you can hope!!!
We felt that he didn’t really given us any answers, just lots of questions to think about. But I suppose there are no answers to the questions that we have at the moment. A lot hinges on what my next PET/CT scan shows. I’m not able to have a scan so soon after radiotherapy, so will have to wait a few weeks, at least, for my skin to recover slightly.
Decided to make an appointment at the Leonardis Klinik. I need to meet with the new Oncologist and talk through the options that they suggested after I contacted them a few weeks ago.
I need to do some thorough research thoroughly to help me feel confident about what to do next.
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