The “Make My Mummy Better” campaign has
been set up to fund treatment that I am receiving
in Germany for metastatic breast cancer
Registered Charity Address:
Friends Supporting Friends
Make My Mummy Better Campaign
Old Courthouse
High Street
Fairford
Gloucestershire
GL7 4AD
Registered Charity No. 1113977
Thursday 4th June 2009
I wasn’t expecting to see my UK Oncologist today as I was told, by his temp secretary on Tuesday, that he was still in Florida. So was very surprised to receive a call this morning telling me that my UK Oncologist had me pencilled in his diary for today, even though his secretary hadn’t booked me into his appointment schedule. I was informed that he would get the PET/CT scan results from Tuesday faxed to him and fit me in at the end of his clinic.
Both Simon and I were very disappointed/shocked by the PET/CT results. The good news was that my bones, organs, etc. were all clear. The bad news was that there was a lymph node on the left hand breast area, just underneath my rib cage which was showing some abnormal activity, i.e. cancer activity. We were not expecting this at all. I thought that there may have been something on the right breast area or on my neck. My consultant was very surprised and disappointed for me too.
We decided that my Oncologist will speak with Mr Gui to see if he has any strong views on surgical options. If not, I would start my treatment of chemo, Lapatinib and Avastin next Friday.
I think it hit me really hard because it was in an area that had been clear on all previous scans. I just feel absolutely gutted. Obviously, I had been hoping that it would be clear. I was just starting to feel more energised and getting my life back. I don’t want to go back to feeling tired and ill all the time. I had a good old cry when I got home and then spent the majority of the rest of the day in bed feeling rubbish.
Something like this is not only difficult for Simon and I, but also affects all of our family members too. Both my family and Simon's family were really upset to hear the results. I found it especially difficult and upsetting telling my mum and dad. I can feel and hear their hurt at the other end of the phone.
When I got up I still felt really upset about the results but I am not going to let this bring me down. I WILL fight this disease and I WILL beat it.
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